A 12 year old Penmaenmawr girl who lives with a brain tumour due to an incredibly rare condition has been recognised with a special award for bravery from Cancer Research UK for Children and Young People.

Gypsy Chamberlain, was just three-years-old when she was diagnosed with Diencephalic syndrome, which affects around 15 children in the world.

The condition, caused by a brain tumour which sits right at the centre of her brain, has stopped her growth at just under five foot. It has also affected her socially as she has a sensory processing disorder with characteristics comparable to autism and she is also unable to regulate her own body temperature.

Chantelle, her mother, said: “Being outside in the cold can be excruciating for Gypsy and in the summer she’s really uncomfortable in the heat”.

Last December, just before Christmas, Gypsy began chemotherapy treatment once again and continues to receive chemotherapy to shrink the tumour.

Now, for the courage she showed throughout her treatment, she has received a Cancer Research UK for Children and Young People Star Award, supported by TK Maxx.

Every child nominated receives the accolade, which is backed by a host of famous faces including Nanny McPhee and Last Christmas actress Dame Emma Thompson and This Morning’s Dr Ranj, as well as children’s favourite entertainer Mister Maker.

There is no judging panel for the awards because Cancer Research UK for Children & Young People believes every child diagnosed with cancer deserves special recognition.

Gypsy also received a £50 TK Maxx gift card, t-shirt and a certificate signed by the stars.

Gypsy’s mum, Chantelle, nominated her for the award. She said:

“As soon as I heard about the Cancer Research UK for Children & Young People Star Awards, I put Gypsy forward because I wanted her to know I was so proud of her bravery and attitude through all her treatment and living with her condition day to day. She especially loved the shopping vouchers”

I couldn’t be prouder of Gypsy, she keeps us all going, she is so thoughtful, and kind and she has an excellent sense of humour, and makes us all laugh”